Resources

Deaf and Hearing Loss Resources

Below you’ll find various resources that may be of use to you as it relates to the deaf and hard-of-hearing. If you know of any other useful links, please feel free to share them so I can add them to my list.

 


Deaf Organizations

Alexander Graham Bell Association for the Deaf and Hard of Hearing  – nc.agbell.org

The Alexander Graham Bell Association for the Deaf and Hard of Hearing helps families, health care providers and education professionals understand childhood hearing loss and the importance of early diagnosis and intervention.  Through advocacy, education, research and financial aid, AG Bell helps to ensure that every child and adult with hearing loss has the opportunity to listen, talk and thrive in mainstream society.  With chapters located in the United States and a network of international affiliates, AG Bell supports its mission: Advocating Independence through Listening and Talking!

American Society for Deaf Children (ASDC) – deafchildren.org

ASDC was founded in 1967 as a parent-helping-parent network. It is a national, independent non-profit organization. Its mission is to support and educate families of deaf and hard of hearing children and advocate for high-quality programs and services.

American Cochlear Implant (ACI) Alliance – acialliance.org

The ACI Alliance is a not-for-profit organization created with the purpose of eliminating barriers to cochlear implantation by sponsoring research, driving heightened awareness, and advocating for improved access to cochlear implants for patients of all ages across the United States.

American Tinnitus Association (ATA) – ata.org

The mission of ATA is to find cures for tinnitus and hyperacusis. This nonprofit organization funds targeted research, provides education support for the tinnitus community, advocates for public policies that advance science toward cures, and collaborates with others to promote awareness and encourage prevention.

Association of Adult Musicians with Hearing Loss (AAMHL) – aamhl.org

AAMHL’s mission is to create opportunities for adult musicians with hearing loss to discuss the challenges they face in making and listening to music; create opportunities for public performance; provide ongoing feedback to hearing health professionals; and provide educational opportunities.

Association of Late-Deafened Adults, Inc. (ALDA) – alda.org

ALDA serves as a resource center providing information and referrals, self-help, and support groups for people deafened as adults. ALDA works to increase public awareness of the special needs of deafened adults.

Association of Medical Professionals With Hearing Losses (AMPHL) – amphl.org

AMPHL aims to assist health care professionals with hearing loss by providing information, promoting advocacy and mentorship, and creating a network for individuals with hearing loss interested in or working in health care.

Baby Hearing Website – babyhearing.org

Babyhearing.org was created by the Boys Town National Research Hospital to answer parents’ questions about infant hearing screening and follow-up testing, steps to take after diagnosis of hearing loss, hearing loss and hearing aids, language and speech, and parenting issues.

Coalition for Global Hearing Health – coalitionforglobalhearinghealth.org

The purpose of the Coalition for Global Hearing Health is to improve ear and hearing health and the lives of people who are deaf or hard of hearing, especially those in low- and middle- income communities.

Hearing Loss Association of America (HLAA) – hearingloss.org

HLAA provides assistance and resources for people with hearing loss and their families to learn how to adjust to living with hearing loss. Its national support network includes an office in the Washington, DC, area as well as 14 state organizations and 200 local chapters.

International Federation of Hard of Hearing People (IFHOH) – ifhoh.org

IFHOH has charitable and benevolent aims and is an international, non-governmental organization. It helps hard of hearing or deaf people of all ages and their families. IFHOH also assists people who suffer from tinnitus, Meniere’s disease, hyperacusis, and auditory processing disorders.

Laurent Clerc National Deaf Education Center at Gallaudet Universityn – gallaudet.edu

The Clerc Center provides information, training, and technical assistance for parents and professionals to meet the needs of children who are deaf or hard of hearing. Its mission is to improve the quality of education afforded to deaf and hard of hearing students from birth to age 21 throughout the United States.

National Association for the Deaf – nad.org

NAD is the nation’s premier civil rights organization of, by and for deaf and hard of hearing individuals in the United States of America. Its mission is to preserve, protect and promote the civil, human and linguistic rights of deaf and hard of hearing people in the United States of America.

National Black Association for Speech-Language and Hearing (NBASLH) – nbaslh.org

NBASLH was incorporated in Washington D.C., June 30, 1978. The organization was established to provide a viable mechanism through which the professional needs of the Black professionals, students, and the communicatively handicapped community could be met.

National Black Deaf Advocates (NBDA) – nbda.org

NBDA is the oldest and largest consumer organization of deaf and hard of hearing black people in the United States. Black deaf leaders were concerned that deaf and hard of hearing African Americans were not adequately represented in leadership and policy-making activities affecting their lives, so they established NBDA in 1982.

 


Deaf News Websites

DeafNation – deafnation.com

Founded in 2003 by brothers Joel and Jed Barish, DeafNation, Inc. is the international leader in video content, news coverage, social networking and special events for the greater deaf and hard-of-hearing community.

 


Medical Videos

Cochlear Implant Surgery Video Part 1

This closed-captioned YouTube video series is a webcast of an actual surgical procedure taking place. The video is one of a number of parts but well worth watching the entire series of videos as they talk a lot about cochlear implants and also answer frequently asked questions. (Warning: the video is graphic so if you have a queasy stomach, beware!)

 


Deaf Culture Opinion Sites

The following sites are meant as informational only. By posting links to these websites, I’m not advocating nor supporting the views of them as they may or not reflect my personal views.

Cochlear War – cochlearwar.com

The Cochlear War website is intended as a central point for information and views on the cochlear-implant controversy and how it affects the lives of deaf people. While they strive to present a fair-minded, balanced view of this controversy, they wish to emphasize the Deaf-cultural view, since numerous other websites already exist for the sole purpose of promoting implants, representing the medical/audiological/implant-industry view, and providing networking opportunities for cochlear-implant advocates and users. The Deaf Community’s view, they feel, is one that is not as well-represented in the media or understood by the general public. They seek to redress this imbalance.

 

Am I missing any important resources? Do tell! Thanks!